Welcome to The Freya Foundation. Our aim is to raise awareness for the condition PDH.

As Freya’s parents, we had no understanding of this condition and were left to find out more information on our own. This is why we have set up The Freya Foundation.

The Freya Foundation's mission is to give information and advice about PDH. By working with doctors and other medical specialists we hope to find out more about PDH including the diagnosis, the different treatments and managing the condition. Thanks for all your love and support

Kelly, Dave, Freya and Freddie


What is PDH?

Pyruvate dehydrogenase deficiency is characterized by the buildup of a chemical called lactic acid in the body and a variety of neurological problems. Signs and symptoms of this condition usually first appear shortly after birth....



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If you are taking part in a fundraising event and are looking for someone to support please contact us as thefreyafoundation@yahoo.co.uk where we can help with a Puffin Pack including sponsorship forms, a t-shirt, wrist band and sticker.



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Proud to be sponsored by the national lottery


A massive thank you to the National Lottery who have helped fund this years meet up. Enabling us to continue supporting the families by offering a chance to get together share experiences and information. The families are very much looking forward to it.