We’re always here for you

Whether you are a newly diagnosed family needing someone to talk to, a healthcare professional looking for resources, or a supporter with a great fundraising idea, we would love to hear from you. There are real people—and real parents—behind this foundation, and we are ready to listen.

If you prefer email, feel free to reach us on thefreyafoundation@gmail.com

Looking for a quick answer?

While we always aim to get back to you as quickly as possible, you might find what you need right away in these sections:

Read our FAQs

Answers to the most common questions about PDH, our community, and how we can help.

Find answers
Visit our Resources

Download patient journey guides and medical information.

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