Shared Journeys, Real Strength
Read honest stories from families who truly understand the profound weight of a PDH diagnosis, offering comfort, resilience, and proof that no one walks this path alone.
You are not alone, even though you feel you are.
Justine, Mum
Enjoy every second - all we can do is hope for the best, celebrate every achievement and milestone and embrace our warriors for who they are.
Lucy, Mum
Eve is the happiest soul... She will overcome all obstacles in her way, very independent and sassy. Doesn’t let PDH define her!
Jenny, Mum
Your child is still the child you had before diagnosis. Use the diagnosis to get the support you need and join the Freya Foundation community.
Sara, Mum