Our Trusted Network
Discover recommended specialists, partnered charities like Matthew's Friends, and extended support groups that share our commitment to giving your family the best possible care.
While we are here to support you every step of the way, we know that navigating a PDH diagnosis often requires a wide net of expertise and care. That is why we have gathered this trusted collection of partners, medical resources, and specialist charities. Whether you are looking for specific dietary guidance, clinical research networks, or broader rare disease support, these are the organizations we trust to help give your family the best possible care.
Matthews Friends
For help with the ketogenic diet such as receipes, starting the diet or general info.
Metabolic Support UK
For information about living with a metabolic disease, useful for help and advice.
The Lily Foundation
The charity aims to give hope, answers and support to the many other children and families that face the challenges of Mitochondrial Disease today.